The Plain Dealer
May 17, 1999 Monday, FINAL / ALL
SECTION: HEALTH & FITNESS; Pg. 1F
WHEN SUPERSTITION GOES TO THE EXTREME; TREATING OBSESSIVE-COMPULSIVE
DISORDER
By HARLAN SPECTOR; PLAIN DEALER REPORTER
The TV is on, his two boys fill the house with activity and John Drotos
sits on the couch oblivious to most of it. He's counting in his head, from
one to seven. He does it over and over, varying the rhythm and modulation.
The better part of an hour passes before he can shake it.
"You isolate a lot," he later says about obsessive thoughts that sometimes
consume his mind.
"He turns into a zombie," says his wife, Sandy.
But it's better than it used to be. Drotos has overcome many of the
ritualistic behaviors that accompanied those thoughts. In the days before
they had a name for his affliction, obsessive-compulsive disorder, Drotos
would get hooked on a number and constantly tap it out with his fingers.
As a kid, he would skip four steps at a time climbing a staircase. He couldn't
ride his bike without stopping, going back 10 feet, and going forward again.
He feared something bad would happen if he altered his routines, though
he knew the fear was irrational.
"You can't put your finger on why you're doing these things," says Drotos,
a 35-year-old occupational therapist who lives in Cleveland's Old Brooklyn
neighborhood. "OCD people know what they're doing is stupid. That's what
makes it so hard."
Pervasive worry
Obsessive-compulsive disorder is superstition carried to the extreme.
It's pervasive worry that can't be reasoned with.
Most people with the disorder perform elaborate rituals to reduce stress
caused by obsessive thoughts. Many fear germs and sickness so much they
scrub their hands raw. A person with OCD can spend the morning checking
the stove, turning the gas on and off, repeatedly leaving the house and
returning to check again.
"In some cases, it's extraordinarily debilitating. They're spending
hours a day washing and checking and counting," says Jerilyn Ross, president
of Anxiety Disorders Association of America.
OCD is a relative newcomer to the psychological lexicon. Fifteen years
ago, little was known about it.
It is regarded today as a biological illness caused by insufficient
levels of serotonin, the chemical messenger of the brain. The imbalance
is thought to interfere with one's ability to assuage a worrisome thought
(for instance, by checking the stove once).
"The strangest thoughts I have ever heard came from individuals with
OCD and they are not delusional," says Dr. John H. Griest of the Madison
(Wis.) Institute of Medicine, who spoke at a recent OCD conference in Middleburg
Heights.
Researchers believe as many as one in 50 adults
have a form of OCD and it often begins in childhood.
It is a disorder commonly misunderstood and easily confused with other
psychological disorders.Littleton, Colo., gunman
Eric Harris was said to have been under medication for obsessive-compulsive
disorder, but its relation to his April attack at Columbine High School
is unclear.
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"There certainly isn't any element of violence in this population,"
says Dr. Donald A. Malone, director of the Mood and Anxiety Disorders Clinics
at the Cleveland Clinic. To the contrary, OCD sufferers tend to withdraw
into routines.
Many other common compulsive behaviors, such as shopping, gambling,
eating and kleptomania, are different from OCD, though they share some
of the same characteristics. One key distinction is there is no element
of pleasure in the compulsions of OCD people.
Same but different
OCD also differs from obsessive-compulsive personality disorder, which
is a constant preoccupation with perfectionism and order. People with this
disorder don't perform rituals and aren't bothered by their compulsions,
whereas OCD generates tremendous anxiety, Malone says.
OCD was long believed to be untreatable. While
it is rarely cured, doctors say it is best controlled with a combination
of behavior therapy and anti-depression medications, such as Prozac
and Luvox, which increase the concentrations of serotonin.
Using a PET scan, which measures activity of different parts of the
brain, scientists can now see how the therapies change hyperactive areas
of the brain, says Malone.
"If you treat these people, their symptoms go away. You can also normalize
the PET scan" he says. "You actually change the way the brain functions
biochemically."
But behavioral therapy, which involves exposure to the source of anxiety,
can be excruciating. It is not widely available for OCD and many therapists
are unwilling to make patients so uncomfortable, says Griest.
He and others believe that avoiding the trigger of discomfort makes
the anxiety worse. So a patient with an irrational fear of catching the
AIDS virus from a toilet seat may be asked repeatedly to lift a toilet
seat and refrain from washing his hands.
Family contributes
Family members are seen as an integral part of the solution. Relatives
unwittingly tend to make the problem worse by accommodating and reassuring
those with OCD.
In some families, members are so unwilling to rock the boat that they
agree to take off their clothes and scrub themselves down before entering
the home, says Dr. Herbert L. Gravitz, a Santa Barbara, Calif., clinical
psychologist and author of "Obsessive-Compulsive Disorder, New Help for
the Family" (Healing Visions Press, 1998).
Gravitz counsels family members to reinforce their love for the sufferer
but clearly communicate how the behavior is affecting them and establish
boundaries. They should create a concrete plan with the OCD sufferer on
how they will respond to an OCD attack, and should praise each accomplishment.
Like other psychological illnesses, OCD creates enormous strain in the
family, says Gravitz.
"To me, OCD is both a bully and an octopus," Gravitz says explaining
how the problem forces itself into family life and pulls everyone in. "It's
a very entangling illness and family members do all the wrong things for
the right reasons."
John Drotos was good at hiding his illness - it was only four years
ago he put a name to it. In earlier years of their marriage, Sandy Drotos
didn't understand his behavior and they didn't discuss it much. But she
was deeply troubled that he would spend endless hours, even days, at a
distance, absorbed in minutae of a small home project or paperwork, or
that he wouldn't hold their first son, J.J., who is now 8, because of an
overwhelming fear he would hurt him.
Stress on family
"It's put a very big stress on our marriage and our family," Sandy says.
"There's a hedonistic flavor of OCD," John says. "Obsessive thoughts
and the behavior take precedence over other things. You're just focused
on yourself."
Now it's all on the table, he says. He is working on his marriage and
has improved with medication and a new career as an occupational therapist,
which he says has helped him focus on others instead of his own anxieties.
But during stressful times, he tends to regress, which is common with OCD
sufferers.
Nobody knows for sure what causes OCD. But researchers believe there
is a genetic link. If a parent has it, the likelihood a child will be affected
is 2 percent to 8 percent, according to the Obsessive-Compulsive Disorder
Foundation. Also, a family history of tic or anxiety disorders appears
to increase risk a child will develop OCD.
Scientists also believe strep throat might trigger some childhood cases
of OCD. Research at the National Institute of Mental Health has shown antibodies
that are supposed to attack streptococcal germs can mistakenly attack certain
parts of the brain that are involved in OCD.
While this progression is rare among the 5 percent to 20 percent of
school-age children who have strep at any given time, studies now are focused
on who is most vulnerable.
More research needed
Gravitz thinks more research will better distinguish different types
of OCD and lead to improved treatment. Behavioral therapy, which he says
can be "barbaric," may be replaced by simulated exposure.
"Virtual reality might be a bridge to the real thing," he says.
Drotos says there are many people who need help. Ross, of the Anxiety
Disorders Association, says less than one-quarter of those with anxiety
disorders get treatment.
"There are some people who can co-exist with it," Drotos says. "There's
other people, if they get out of their house, they're doing good."
GRAPHIC: PHOTO (COLOR) BY: BRYNNE SHAW / PLAIN DEALER PHOTOGRAPHER;
John Drotos has struggled to get his obsessive-compulsive disorder under
control. His wife, Sandy, says it has been difficult on the family. Drotos
first became plagued by intrusive thoughts when he was 12. "I'm learning
to have a happy co-existence with it," he says.
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